My Head

I have been having so many issues lately and it is just getting out right frustrating. I have been seeing my family doctor for months now telling her about the extensive headaches, pains, body pain that has been getting worst, dropping things, not being able to speak at some points and much more. She said some was from my fibromyalgia, some was maybe seizures and the other she kinda blew off. It kept happening and I kept pushing, she finally sent me in for a EEG to see if I was having seizures, and the test said I was not.

She said I needed an MRI but wanted a specialist to order the test so the insurance would pay for it. So last week I finally was able to see a Neurologist, she asked me about what was going on and blew half of the issues off as stress, put me on a new med (which I am not thrilled about) to take away inflammation in my head to help with headaches (even though I am on a migraine medicine) and she wants me to get a MRA (not MRI) which looks at the blood vessels to make sure there is not a annarysum. But said since I had a MRI in 2003 (it is now 2012) that I don't need one done.

Over this weekend, more issues came up. I started having pain on the top of my head, it hurts to the touch, and nothing, I mean NOTHING is taking the pain away, it hurts to the touch. Then Saturday I started having headaches over my right eye and as it got worst my eye started fluttering for a short time and quit. I thought for a quick second it was seizure but blew it off. Sunday the same things happened, I had pain on the top of my head sore to the touch and then later in the day pain above my eye started again, this time something worst happened. My eyes started fluttering out of control and I screamed for my husband. He came over to me and asked if I could hear him, I said yes, he asked if I could see his hand, I said yes, but I could see that my right eye was fluttering out of control. After about a minute of this I came out of it. He said both of my eyes were looking up to the right and they were both fluttering (or twitching) the same speed the same way. I could not feel that my left eye was doing this just my right, however I could see out of both of them.

So I called my Neuro today and told the office what was going on, she said she would tell the doctor and that was about the entire call. I also called and left another message for my family doctor. The nero called back and said now she wants a EEG done next week. I stated why I just had one in April and she said things could change. My comment? oh you mean like me wanting a MRI and being told I had one in 2003 and didn't need one? She really didn't know what to say to that......

So I sit here and work on my work (or try to) stressing about these test and trying to find some relief from these headaches that are not getting better and just don't seem to be normal headaches... I guess tomorrow starts the journey one way or another. To be honest, I am scared out of my mind, I want to know what is going on, but at the same time I am scared to hear those words.

I am a mom, I have a husband who has MS and has been in a flair up for the last few months, I have a daughter who has non focal seizures that I have to give extra help to for her homework (her short term memory is really low because of the seizures) and my other daughter has her own learning difficulties that we are over coming. So as you can clearly see, I really don't have time to be sick, to stress or to have to continue to go to doctors, but I guess for now we humor them and get the test done to see if they can figure this out.... More tomorrow after my test.