Wednesday, March 7, 2012
DEQ, DOW and Dioxin
I have been AWALL sorry
I had to stop the medicine the doctor gave me for the head pains and massive sensitivity. The pain is hard to explain but the best way to explain it is, have you ever tripped and ran the top of your head into a wall and then you ended up with a goose egg that hurt to touch? That's exactly what it feels like but the pain is on the inside and out. The medicine was actually helping, but it was making me sick to my stomach, increasing my heart rate and making me feel real shaky and like I wasn't me or in control of my own body. So I had to stop. i have called my family dr two more times and when I FINALLY talked to the nurse she said the dr said she wants to call me back her self, but she hasn't yet and its been three weeks and 5 calls.
I took it upon myself to make an appointment with Brandon's Neuro for me, I am hoping he can shed some light on what is going on. Speaking of which, Brandon is flaired up sooo bad, he is suppose to see our family dr Monday and the neuro in a few weeks. I know some of my stress is because of what he is going through too.
I'll try not to vanish much more.
Saturday, February 25, 2012
Feeling blah
I ended up getting really sick wed night with the flu, I am still trying to recover, its crazy how much its taken out of me and how weak I have been feeling its hard to pull out of this. Hopefully I start recoiling soon.
On another note I left the first msg for my doctor 11 days ago and the second msg 5 days ago telling her I had two seizures and I needed to talk to her and she still hasn't called me back. I am absolutley furious, I am not sure if its her nurse or her, either way this is not right and I am so fed up.
Wednesday, February 22, 2012
My MRA results
No aneurysm mra was normal... asked the dr what test she was going to do next, she told me after the eeg Monday I have to wait till my next app In Four weeks before she runs any other test or makes any other decisions. I just have to live like this for four weeks? She said there was nothing else she could do right now and she couldn't get me in earlier..... really???? I am so frustrated!!!! And I had to call her to get the results..
Tuesday, February 21, 2012
The Caller ID can be a mean thing
MRA today and the waiting game.
So what is an MRA?
According to dedicatingimaging,
Angiography is a minimally invasive medical test that helps physicians diagnose and treat medical conditions. Angiography uses one of three imaging technologies to produce pictures of major blood vessels throughout the body.
In magnetic resonance angiography (MRA), a powerful magnetic field, radio waves and a computer produce the detailed images. MR angiography does not use ionizing radiation (x-rays). MR angiography may be performed with or without contrast material. If needed, the contrast material is usually injected using a vein in the arm.
What are some common uses of the procedure?
The waiting game..
I am sitting here waiting to go in for my MRA. have to say I am a little freaked out, really not wanting to be here and especially by myself.
Monday, February 20, 2012
My Head
She said I needed an MRI but wanted a specialist to order the test so the insurance would pay for it. So last week I finally was able to see a Neurologist, she asked me about what was going on and blew half of the issues off as stress, put me on a new med (which I am not thrilled about) to take away inflammation in my head to help with headaches (even though I am on a migraine medicine) and she wants me to get a MRA (not MRI) which looks at the blood vessels to make sure there is not a annarysum. But said since I had a MRI in 2003 (it is now 2012) that I don't need one done.
Over this weekend, more issues came up. I started having pain on the top of my head, it hurts to the touch, and nothing, I mean NOTHING is taking the pain away, it hurts to the touch. Then Saturday I started having headaches over my right eye and as it got worst my eye started fluttering for a short time and quit. I thought for a quick second it was seizure but blew it off. Sunday the same things happened, I had pain on the top of my head sore to the touch and then later in the day pain above my eye started again, this time something worst happened. My eyes started fluttering out of control and I screamed for my husband. He came over to me and asked if I could hear him, I said yes, he asked if I could see his hand, I said yes, but I could see that my right eye was fluttering out of control. After about a minute of this I came out of it. He said both of my eyes were looking up to the right and they were both fluttering (or twitching) the same speed the same way. I could not feel that my left eye was doing this just my right, however I could see out of both of them.
So I called my Neuro today and told the office what was going on, she said she would tell the doctor and that was about the entire call. I also called and left another message for my family doctor. The nero called back and said now she wants a EEG done next week. I stated why I just had one in April and she said things could change. My comment? oh you mean like me wanting a MRI and being told I had one in 2003 and didn't need one? She really didn't know what to say to that......
So I sit here and work on my work (or try to) stressing about these test and trying to find some relief from these headaches that are not getting better and just don't seem to be normal headaches... I guess tomorrow starts the journey one way or another. To be honest, I am scared out of my mind, I want to know what is going on, but at the same time I am scared to hear those words.
I am a mom, I have a husband who has MS and has been in a flair up for the last few months, I have a daughter who has non focal seizures that I have to give extra help to for her homework (her short term memory is really low because of the seizures) and my other daughter has her own learning difficulties that we are over coming. So as you can clearly see, I really don't have time to be sick, to stress or to have to continue to go to doctors, but I guess for now we humor them and get the test done to see if they can figure this out.... More tomorrow after my test.
